On this day ten years ago….my mother and I traveled an hour away from my hometown to visit my neurologist to receive my official diagnosis. The results from the spinal tap had come back, and finally, Dr. Nelson would tell us for sure if I had a pinched nerve, MS, or a brain tumor. He had given all three of these as possibilities as to why my entire left side had stopped working normally, but his theory was that I most likely had MS. That is what we knew before we got to Wilmar, MN. I was CONVINCED that it was nothing but a pinched nerve, and for some unknown reason my name had been on the prayer list at church for the last few weeks.
On that day, ten years ago, I was officially diagnosed with Multiple Sclerosis. I was started on some medical steroids, and I was shown how to use the Autoject for my three-times-weekly medicine shots, just under the skin. (It would be another year before I gave myself those shots….and, of course, I was bribed—because what other way is there for a kid to be willing to do something unless they get something in return?)
Since my diagnosis, we have called the anniversary of that day my “celebration of life.” It is the day when I can look back on a year and see all the things I have been able to do, even though I have MS. On this ten-year anniversary of this life-altering diagnosis, I reflect on the things I have accomplished in my life!
1. I’ve been on all sorts of cool vacations and stuff.
Who cares if I had to rent a wheelchair to go Disneyworld? I went to Disneyworld! I’ve also rented wheelchairs at zoos, and even the Minnesota State Fair. Those places take a lot of walking, and I don’t quite have the energy to walk all that way. But I still got to experience it and enjoy my visits! Those places, by the way, have been the only ones I rented a wheelchair for. I can still walk! ….just not super far. I’ve been to the Wisconsin Dells and the Black Hills of South Dakota, just doing the tourist thing because I could. In high school, I went to a youth gathering with a church denomination, and had an AWESOME time with my cousin Jenni and my aunt Sheryl! In college, I went on TWO summer mission projects. Just because I have MS, doesn’t mean I can’t have fun! So I have to plan a little extra, and the south is typically a bad idea in the summer. I STILL LIVE LIFE.
2. In middle school, there were no cheerleaders, and I wanted to be one, so I petitioned and found a coach for middle school basketball cheerleaders!
We were moderately good. Our most difficult move was when one cheerleader stood on the thighs of two other cheerleaders, but we stayed safe. I wasn’t really into watching sports, but I did notice that when our middle school teams had cheerleaders, the whole “crowd” was pretty riled up. You know, for a middle school game. Smiley face. Of course, this cheerleading team kind of left the middle school when I did. I always wanted to be a cheerleader. Our high school had football cheerleading, but by that time, I just wanted to play in the pep band. (We see why I became a music major?)
I was also on the golf team for a few years before the walking became too much for me and I acknowledged that I wasn’t that great. But it was fun!
3. I got my black belt!
Actually, I started Tae Kwon Do in 4th grade. In 7th grade, I got my junior black belt. I was diagnosed with MS in 8th grade. In 9th grade, I got my 2nd degree junior black belt. After I turned 16, sophomore year, I got my first degree adult black belt. And senior year, I got my second degree adult black belt! I was involved in Tae Kwon Do for 8 years; 5 of those years after having MS. I remember difficulty in my first tournament after being diagnosed, but then I just focused on what I COULD do instead of what I COULDN’T. I taught and I was a referee as my level advanced. I became inactive in TKD after I graduated high school, but I will always be a second degree black belt!
4. I finished high school AND college.
One of my college professors once told me that he had never seen such determination in a student. So I wasn’t the best. Who cares? I did as best I could. I was DETERMINED to finish well and I learned a ton while in those college years. I wrote a post about what MS has taught me over the last decade or so here.
5. I played a senior recital of percussion music.
At that time in my life, I had skill, because I was playing on these instruments all the time. I played a piece on the marimba, the timpani, some toms (drums), the vibraphone, and even flower pots! (Videos of all these can be seen on YouTube.) I loved that season in my life, when I could go from instrument to instrument in the percussion section in an empty band room and just PLAY.
6. I’ve had a “grown-up job” since I graduated.
Even before I graduated, I’ve been giving private lessons. According to some of my other music-major friends, I wasn’t charging enough, but still. As soon as I graduated, I got on the substitute teacher list for a few different school districts. And when I got to Kentucky, of course, I began working at a music store—giving lessons! And now I’ve started up this Mary Kay business! Before I was married, I paid my own rent, bought my own food, and loved when Mom and Dad came to Sioux Falls to take me grocery shopping. And now, I don’t get many visits from Mom and Dad (because I currently live, like, 20 hours away), but I still get care packages of coffee brands that aren’t sold in the south. (Thanks, mom!)
7. I’ve written, like, four novels.
Only one I’ve written is decent enough for me to want to publish it, but I do want to publish it! [2015 edit: you can find my first book here.] I also write shortstories and blog posts all the time. And other little things when I feel like it. I’ve kept a journal since I was diagnosed! And things have just kept moving from there. I don’t believe they will ever stop, either.
8. I wrote music for a class in college and directed an ensemble playing it in church one time.
So I maybe didn’t take into consideration that band instruments play better in flats than sharps. And that high school students can’t pick up music as fast as college students. But I was so proud of that piece! I even published my college friends and I playing the piece here on YouTube.
9. I GOT MARRIED!
Just this last summer, if you are keeping up with me at all on this blog. (I’ve kinda talked about it a lot….) Never did I ever think I would meet a man who saw ME past the MS that has been so apparent in my life. I have a limp, which is the most obvious symptom to the world and the first turn-off to anybody who sees that instead of me first (which is pretty much everybody). But Dr. Wile E. Coyote, while he notices my limp, only notices if it’s a bad day or a good day and helps me stretch sometimes. Or if he’s walking with me, and I pull him around. (He’s not as sturdy as my sisters when they’ve walked with me, hehe.) I love Dr. Coyote, my best friend, and he is what I need. But God knew that. And I am privileged to be starting this med school journey with him and trusting the Lord until graduation, and beyond! (Like, forever. Every. Minute.)
10. I have become stronger than I thought possible.
Physically, mentally, and emotionally. I have had to push past the limits of where I would want to quit because something is hard. Being diagnosed so young (at 13), I had to face many decisions and situations that most teens shouldn’t have to face. I thank the good Lord for my always-supportive family who helped me so much!
On this day in ten years, who knows what things I’ll accomplish that I’ll be able to remember? The thing about having MS is that though we have to plan a little more, sometimes sleep a little more, and maybe be careful of what activities we chose to partake in, we still live normal lives. I haven’t felt normal for years, but I wouldn’t have it any other way. I would love to wake up one day and the Lord tell me, “You’re cured!” But I know that when people see me walking with a limp, unphased, it brings God more glory.
Anna E Meyer
So I’ve talked about what I’ve learned and what I’ve done, MS wise. What else would you all like to know (MS-wise)?